tag:blogger.com,1999:blog-6685180196267695509.post5652892003871733521..comments2023-08-14T04:09:40.626-05:00Comments on Reagan Haley and Family: Reminders of the painDawnhttp://www.blogger.com/profile/12453870945508258690noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-6685180196267695509.post-61995451217526948632010-08-25T07:33:24.861-05:002010-08-25T07:33:24.861-05:00Dawn, I totally agree with everyone---it does get ...Dawn, I totally agree with everyone---it does get easier! Those feelings of what Avery cant do are almost daily replaced by feelings of what she can do! I still have my moments---and just want to stomp my feet and scream but in the end Avery is perfect just the way she is and am so proud to call her mine!Carrie and Averyhttps://www.blogger.com/profile/14047033694894816381noreply@blogger.comtag:blogger.com,1999:blog-6685180196267695509.post-86811448065573119282010-08-24T10:35:20.217-05:002010-08-24T10:35:20.217-05:00Unfortunately, there will always be "triggers...Unfortunately, there will always be "triggers" that just send us back to a time where the tears a flowing. Remember that it is OK that you do that...we are human! (Of course we are expected to tackle unhuman tasks for sure!) Know that you are LOVED so much by so many! Hugs to you!<br />KellyBrooklynhttps://www.blogger.com/profile/11930568366936897803noreply@blogger.comtag:blogger.com,1999:blog-6685180196267695509.post-39019338272453071052010-08-22T22:24:58.666-05:002010-08-22T22:24:58.666-05:00It doesn't take much to take me back to those ...It doesn't take much to take me back to those days before Abby's diagnosis. I agree with Erin that it has gotten a little better over time. Things that caused a complete meltdown last year are easier this year. I hope your spirits are lifted today. Thanks for sharing!Ann Mariehttps://www.blogger.com/profile/00363526402404082752noreply@blogger.comtag:blogger.com,1999:blog-6685180196267695509.post-69214716541021253492010-08-22T20:29:07.998-05:002010-08-22T20:29:07.998-05:00All of you Rett Mommy's are so strong and supp...All of you Rett Mommy's are so strong and supportive. I am so glad that Dawn has all of you to lean on! And Dawn, I am glad you are 100% honest in your blog entries...and I am sure it is a kind of therapy for you too! You know I am always here for you!Hugs!Amyhttps://www.blogger.com/profile/18075327051198137258noreply@blogger.comtag:blogger.com,1999:blog-6685180196267695509.post-73020834949821174482010-08-22T18:54:30.051-05:002010-08-22T18:54:30.051-05:00You are so not alone! I often think about the yea...You are so not alone! I often think about the years when things were carefree and I didn't worry so much. I have a homemade ornament of Riley's handprint that I made when she was 8 months old, before we had any clue that something was wrong. When I get it out at Christmas I go through those feelings of loss all over again, even though she is right here. It's getting better though, maybe my feelings of loss are being replaced by hope?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6685180196267695509.post-33330911458145452422010-08-21T10:44:58.638-05:002010-08-21T10:44:58.638-05:00Dawn, I can't imagine what it is like to have ...Dawn, I can't imagine what it is like to have Lauren so close to entering this crazy club. When Chloe was around 7 months, I felt like she was pushing everything that I hate about Rett right in front of my face. She walked, she fed herself and it made me really face what had been stolen from Claire. It wasn't fun, but I feel now and love them both so much more through the tears. xxColleenhttps://www.blogger.com/profile/03696326541180487827noreply@blogger.comtag:blogger.com,1999:blog-6685180196267695509.post-81208459195006677492010-08-20T18:07:22.709-05:002010-08-20T18:07:22.709-05:00Thank you Amy for all of your support! I know thi...Thank you Amy for all of your support! I know this post is really a downer. I wrote it and then saved it to post later. I almost didn't post it though because I hate being so negative. But, I want this blog to reflect the reality of our life, not all rainbows and puppy dogs.Dawnhttps://www.blogger.com/profile/12453870945508258690noreply@blogger.comtag:blogger.com,1999:blog-6685180196267695509.post-50300464613594309762010-08-20T15:57:24.684-05:002010-08-20T15:57:24.684-05:00While reading this post, I just sobbed. I hate th...While reading this post, I just sobbed. I hate that you have to go through all of this pain. I hate that I never know what to say to you, or if I should say anything at all. I usually try to send encouraging e-mails and comments, but the truth is, I think Rett Syndrome sucks and I hate that my dear friend and her family is being SO affected by it. I love you and think you are absolutely amazing. Lauren and Reagan are so lucky to have you as "Mommy" and I am so lucky to have you as "friend". Much Love!Amyhttps://www.blogger.com/profile/18075327051198137258noreply@blogger.com