We are so very thankful to the wonderful friends and family that have given our family unbelievable support as we find our way through the diagnosis of Rett Syndrome. We truly feel lucky to have so many wonderful people rallying around us and helping us get through this day by day!
I wanted to let you know that with all of your support we were able to EXCEED our fundraiser goal for Reagan's 2nd birthday! During the creation of her fundraising site, I put that dollar amount in thinking that we would hopefully have raised those funds by her 3rd birthday and at that time we would start the annual goal over. But once again the amazing people in our lives showed us how much they care. We can not thank you enough for your contribution to fund the research that will lead to a cure for Rett Syndrome!
The results of the MSNBC and International Rett Syndrome Foundation (IRSF) advertisement on February 24th are phenomenal! The IRSF Executive Director has reported that they received a total of $80,845 in online donations on February 24th and it was officially the greatest day in online giving in Rett Syndrome history. Yep, you all made history and we thank you!!!
Hi and welcome to our family blog! We have a 4 year old daughter, Reagan, who has Rett Syndrome and a 2 year old daughter, Lauren. This blog is to help others understand Rett Syndrome and to share our journey.