Reagan had an Upper GI (gastro intestinal) test done on Monday, requested by Dr. Motil at the Blue Bird Rett Clinic. She was concerned about Reagan having reflux and other possible reasons for her gagging and eating issues. The test was not as simple of a procedure as I thought it would be but thankfully it was very short. Poor Reagan was not a fan and it was pure torture for her, and just as awful to stand there and watch.
I have not spoken to Dr. Motil yet but I did get an opportunity to speak with her nurse. She said that it looks like Reagan's stomach has a delay in emptying. This could cause her to be full for longer and not want to eat as much. Also can be the reason for reflux and always feeling like she needs to burp. I am anxious to get more information but in the meantime have reached out the my Rett family to see if anyone has more information or advice. So, good news is that we might have a possible solution to her feeding issues soon!
Abby's first visit to Boston for the IGF-1 Trial
3 years ago