We need your help! Here is the info from the IRSF website. Click this link to send your Congressman a letter saying that you support Rett Syndrome funding. http://www.rettsyndromeadvocacy.com/alertdetail.aspx?AlertID=4
IRSF is extremely honored to have been invited to Congress to appear before the House Appropriations Subcommittee on Labor, Health and Human Services, Education and Related Agencies on Wednesday, May 12th, to testify regarding the requested $500,000 in funding from the Center of Disease Control and Prevention to support education, awareness and outreach for patients, health professionals and the public regarding Rett syndrome (RTT). This funding will also help us establish the foundation required to accelerate treatments of this debilitating brain disorder that is often misdiagnosed.
Abby's first visit to Boston for the IGF-1 Trial
3 years ago