Not long after we got Reagan's diagnosis I joined an organization called Girl Power 2 Cure (girlpower2cure.org). It's a non-profit organization founded by a Rett Mom to raise funds and awareness for Rett Syndrome. It is through this organization that I ordered what is referred to as "The Purple Card." These are cards that I hand out when I am out with Reagan and I know that people are curious of her condition. I will be honest, I am terrible at describing Rett Syndrome, the words just never seem to come out right. However, this card takes care of that for me and eloquently describes it so that I don't have to fumble over my words.
A few weeks ago I took Reagan to get fitted for a new pair of shoes. Obviously the sales lady had a lot of direct interaction with Reagan and I knew she was curious but would never ask. So, as I was checking out I handed her a card and told her that it explained my daughter's condition. I thanked her for being so kind and she thanked me for sharing Reagan's story. I left feeling so happy because I knew that on that day two more people (there were 2 clerks in the store) knew of Rett Syndrome. Here is a picture of the card:
Abby's first visit to Boston for the IGF-1 Trial
5 years ago