Not long after we got Reagan's diagnosis I joined an organization called Girl Power 2 Cure (girlpower2cure.org). It's a non-profit organization founded by a Rett Mom to raise funds and awareness for Rett Syndrome. It is through this organization that I ordered what is referred to as "The Purple Card." These are cards that I hand out when I am out with Reagan and I know that people are curious of her condition. I will be honest, I am terrible at describing Rett Syndrome, the words just never seem to come out right. However, this card takes care of that for me and eloquently describes it so that I don't have to fumble over my words.
A few weeks ago I took Reagan to get fitted for a new pair of shoes. Obviously the sales lady had a lot of direct interaction with Reagan and I knew she was curious but would never ask. So, as I was checking out I handed her a card and told her that it explained my daughter's condition. I thanked her for being so kind and she thanked me for sharing Reagan's story. I left feeling so happy because I knew that on that day two more people (there were 2 clerks in the store) knew of Rett Syndrome. Here is a picture of the card:
I think the purple card is a wonderful idea! My girls LOVE the one we received at the strollathon. They walk around holding it saying "baby" or "cute". They love their friend Reagan!...and their Mommy does too! Can't wait for our next playdate! Hugs!!!
ReplyDeleteI have to admit when I was handed one at the Stroll-a-thon I thought it was very nice and informative, but didn't know *why* you would have it. Now it makes perfect sense.
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