The past week has been a difficult week for Reagan. She has been more tired than usual during the mornings, although not much has changed with her sleep pattern or medications. She has had more screaming fits than I can even count. I don't know if the screaming is just another fun RS symptom, pain related, frustration from not being able to talk, or just a 2 year old thing...or maybe a combination of all the above. We try to comfort her when she is upset but it only seems to upset her more. Most of the time the only thing that will calm her down is her favorite tv show and there were a couple of days where even that didn't work. I look forward to the day when she can communicate with me to voice the pain, frustration and choices that she would prefer.
Hi and welcome to our family blog! We have a 4 year old daughter, Reagan, who has Rett Syndrome and a 2 year old daughter, Lauren. This blog is to help others understand Rett Syndrome and to share our journey.