Monday, August 16, 2010

Can you find what's missing?

It's her arm braces!!!  

This is the first time that I have been able to feed Reagan a meal without her arm braces since April, that was 4 months ago!  A little history for those that aren't familiar with mouthing but without the arm braces she consistently puts her hands in her mouth, which can be a complete disaster if you just fed her a spoon full of yogurt.  Mouthing is one of the many typical hand movements that girls with Rett Syndrome have.

There have been several occasions recently where she will not put her hands in her mouth for 30 minutes or so after she wakes in the morning or from her nap.  This morning it last for 2.5  hours...I know because I looked at the clock every 10 minutes to time how long it lasted!  I was so proud of her because I could see that she wanted to and would bring her hand up, but then we would have a talk about not needing arm braces anymore and she would give me a look to let me know that she understands, and her hand would come down.  I know she wanted to mouth but she tried so hard until she just couldn't stand it any longer!


  1. way to go Reagan!!!

    you have beautiful girls! I love Reagan's hair! I can't grow Riley's - it gets too thin and stringy. :)

  2. You're absolutely amazing, Reagan! Hugs!