We followed that up with a visit to her Pediatrician. She has been lethargic and exhausted almost all.the.time for the past couple of months. I called her Rett neurologist about 6 weeks ago and they ruled out any Rett related causes but mentioned that she doesn't seem to be taking in enough fluids so we should visit her Pediatrician to see about dehydration. We did and that was crossed off the list and we thought she was just going through a growth spurt. Fast forward to last week and I am more concerned because the lethargy is not going away and I can't believe that this is normal for an almost 3 year old to be too tired to do anything. So, back to the Pediatrician's office and 5 days later the blood work confirms Reagan has (or had) mono! She is on the other side of it and is not contagious, but the lethargy will continue (for weeks or possibly months) as her little body tries to recover. The only thing we can do is provide her with plenty of fluids and rest.
We also received a trial communication device with eye gaze (ECO2) from PRC last week to test out and confirm that this talker is as great as we think...but that's a separate post!
And lastly, this week Reagan had her first dentist appointment. This is probably the appointment that I was dreading the most because I thought it would be a bad experience with the dentist forcing her to keep her mouth open while they examined and cleaned her teeth. I am glad that I was wrong, it was the BEST visit to a Pediatric Doctor ever, and we've seen our fair share of Pediatric Doctors! As luck would have it, I came across the name of a Special needs dentist who recently started seeing patients at the Dell Children's Medical Center...so thankful for Google and the recent article our local station did on Dr. Lisa Jacob. Dr. Jacob was so kind and gentle that Reagan was calm enough to gladly show her teeth! It was awesome, no screaming or crying, just smiles and a Tinkerbell sticker at the end! And as a special treat for being such a brave girl, she got a vanilla milkshake on the way home, oh wait, that's part of her regular diet to get her to gain some weight. Oh well, she still enjoyed it!
She was not very enthusiastic about wearing her glasses and even less enthused with me taking her picture, so this is the best I have for now: