Friday, September 16, 2011

Three weeks post g-tube surgery

It has been 3 weeks since Reagan had surgery for a fundoplication and g-tube and I am very happy to say that she is doing well!  We were released from the hospital on her 6th day and sent home with supplies and instructions.  The transition home was a little difficult but we have since got the hang of things.  She didn't seem to have much pain from the surgery once we were home and the only problem was some discomfort from lack of bowel movement and also having a lot of gas.  We are still tweaking her medicine to find the perfect dose to keep her comfortable.

She went back to school this week and it has been a smooth transition. She was ready to go back last week, which was 2 weeks after the surgery, but the school district was closed all last week due to the devastating wildfire in our community that left many families without homes.  We feel very fortunate that our house was not damaged and our hearts are heavy for those that lost all of their belongings.  But that is a separate post, back to Reagan.  I haven't weighed her since the surgery but I can see that she has gained weight and she also seems to feel better.  She is more alert and has better use of her hands already.  She will hold on to my hand while we walk to class in the morning, which is something that she lost in the early stages of Rett.

The only negative was that it took her some time (and she's still working on it) to get her balance back and feel confident in walking.  She is getting better every day though and we have resumed her private physical therapy sessions in hopes of speeding up the recovery.

I am very happy that we chose to have the g-tube surgery and I am no longer stressed about going into the Winter months and fearful of her getting sick, then losing several pounds that she can not afford to lose.

Here is a picture that my Mom took with her phone a couple of hours before surgery:

And smiles again 5 days later:


  1. Glad she's feeling better! It takes Evalyn quite a while too. She's almost back to normal with PT since her tonsillectomy. HOpe she continues to improve!

  2. Thanks for the update! I'm so glad she is doing well and putting a few pounds on.

  3. So glad to read this! What a hard thing to do to not weigh her. I love that you can see the measure of success in her alertness and hope that she continues to get more and more use of her body and that she stays feeling well. Big hugs to you Super Mom!

  4. yay yay yay for hand holding and weight gain!