There are so many dreams that are shattered with the news of a life changing disorder for your child. Among those is the realization that my girls would not share all of those precious moments that I envisioned they would as sisters, less than 2 years apart in age. They wouldn't fight over Barbie dolls, share a room with bunk beds, have sleep overs as teenagers, and eventually be a maid of honor in each other's weddings. And honestly, typing out all that out still makes the waterworks flow more than ever because I still want that more than anything for my girls.
But, this is now our reality. Rett Syndrome is part of our daily life. My girls have a bond that is different than most typical sisters at their age (approx. 3 1/2 and 1 1/2) but they have a bond nonetheless. Reagan finds amusement in Lauren's silly ways (as well all do!) and will often let out a giggle in response. She is patient when Lauren climbs on her and invades her space because she wants to love on her big sister. Lauren is more understanding and compassionate than I ever thought a child her age could be, always wanting to be my "helper" (her new favorite word) when I am giving Reagan a sip of juice, feeding her, or pushing her stroller.
I caught this moment on my phone's video recorder today so not only is it poor quality with a high volume, but it's sideways. But, it is one of the most treasured videos that I now own. These two sweet, beautiful little girls of mine are communicating in their own very special way. You'll see that neither of them speak a word but communicate with gestures and body language, sharing a very special moment that makes me swell with pride over the love that they have for each other. I would change things in a moment and give these sisters the chance to fight over toys in a second, but I still could not ask for two more loving sisters that share something special.