Okay, let's forget that I just posted the other day about being completely happy. Now I am just frustrated. Reagan had an appointment today with her Nutritionist and there has been NO weight gain since her last weight check four weeks ago. It is so incredibly disappointing and frustrating to see her not gain any weight when I am feeding her heavy whipping cream by the spoon full as well as hot dogs and tons of cheeses. What does this girl need to eat to gain weight?!? I suppose the positive is that she is still in the 25th - 50th % for her age group and that she has not lost any weight in 4 weeks. However, her Gastro Intestinal Doctor's voice looms in my head, "she must gain 3 pounds by her next visit in October." Okay, that now seems impossible so then what?
Hi and welcome to our family blog! We have a 4 year old daughter, Reagan, who has Rett Syndrome and a 2 year old daughter, Lauren. This blog is to help others understand Rett Syndrome and to share our journey.