I searched through some old blog posts, searching for a previous entry, and stumbled upon a video (click to view) of Reagan jumping on her mini-trampoline in February, an early 2nd birthday gift. We used that exact same trampoline today for her physical therapy session. The toddler in the video seems like so long ago, but it's only been a little over 8 months. Yet already Rett Syndrome has taken away so much from her. The thing that I miss the most is how happy she used to always be and a giggling ball of sunshine. It is so rare lately that we hear her giggles anymore or that she seems truly happy. If she is having a really good day, she'll give us smiles and maybe a giggle. She will come over to us and acknowledge us more, but most days she seems so indifferent. I hope that this stage of Rett Syndrome ends soon and our happy little girl will be returned full of smiles and laughter.
Hi and welcome to our family blog! We have a 4 year old daughter, Reagan, who has Rett Syndrome and a 2 year old daughter, Lauren. This blog is to help others understand Rett Syndrome and to share our journey.